HelixbankELIXIR node

Access

How to apply

Four steps, one committee, and a set of obligations that continue after your paper is published.

01

Register

Verify your institutional identity through your federation. We do not accept personal email addresses.

02

Apply

Describe the research question, the cohorts needed, and attach the ethics approval that covers it.

03

Committee

The relevant data access committee reviews against the original consent. Meetings are fortnightly.

04

Agreement

Your institution signs the data access agreement. Access is provisioned within one working day of signature.

What you commit to

During the project

Re-identification
prohibited, without exception
Onward sharing
prohibited, including to collaborators not named
Storage
enclave, or an approved secure environment
Publication
acknowledge cohorts, cite the accession

After the project

Data destruction
within 90 days of project end
Confirmation
signed by the institutional representative
Derived results
summary statistics may be retained
Audit
we may request evidence for up to 3 years

Timelines, measured

StageMedian90th percentileNote
Identity verification1 day4 daysdepends on your federation
Application to committee8 days16 daysfortnightly meetings
Committee decision19 days41 daysincomplete applications dominate the tail
Agreement signature11 days38 daysentirely on your legal office
Provisioning4 hours1 dayautomatic once signed

Application questions